getting that initial diagnosis: some days it will be hard and that is ok

A little about me… I am a college student with Hashimoto’s thyroiditis, hypocholesterolemia, and some other medical stuff. Getting that first diagnosis is hard.

Getting that diagnosis is confusing. It made me wonder what the rest of my life would be like. I wondered how much it would affect me every day until the day I would die. I wondered how long I would live, and I caught myself googling the name of each diagnosis followed by life expectancy. I started reading other people’s stories and life hacks for managing these diagnoses. I read about all the diagnoses and the vitamins and supplements I was given.

Adjusting is also really hard, but I think the hardest part is managing all the emotions that come up. Confusion. Anger. Frustration. Fear. And then all the questions too: How do I deal with this? Why does my doctor seem to be so confused by these lab results? Which doctor do I go to next? Why did all those other doctors not understand this? Why did no one pick up on this when I was 11 and was tested for this then? Why me? Why now? Why can’t I do this the way I used to be able to?

Getting that initial diagnosis is hard, and it can be really confusing, especially when you know there is a missing piece that doctors do not understand. It is frustrating when you have to wake up at 6 to get up by 8. It is frustrating when you cannot play the piano on some days because your hands are too shaky. It is frustrating when you have to take breaks in sports practice and eat a ton of food – just to prevent passing out. And it might get better, but it might not. It might get better, but it might be hard every day, for the rest of your life. If you were looking for false hope, I am not giving it here. It’s pointless. It might not get better. But that’s ok. You might not be able to do things the same way, and maybe there will be missed opportunities. But that is ok.

We who have chronic illnesses have something that others do not. We can relate to each other. I have really strong bonds with others that have chronic illnesses, because we understand what it’s like to have to miss a class because of having a rough day and not being able to get out of bed until later. We also have beautiful stories. I could tell you about 400 different times that God spoke to me through the autoimmune disease and the other things. God works through us in unique and different ways. Our pain can be beautiful. Our testimony can lead others to Christ. Our weakness can show the strength of Christ within us.

So, to anyone who just got a scary diagnosis, it is going to be hard. You have a long journey ahead. But Christ gives strength! Trust Him, for He is painting a beautiful story that includes your pain and your weakness.

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